[Dr. H's Clipboard] Palliative Care: How Patients Can "Live a Little" with Chronic Illness

Published: Thu, 02/08/18



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Palliative Care: How Patients Can "Live a Little" with Chronic Illness
"Driving Miss Norma" became a Facebook sensation two years ago after Norma was diagnosed with uterine cancer and told her doctor, "I'm hitting the road." Accompanied by her son, daughter-in-law and their dog, Ringo, Norma took off across the U.S. and posted stunning photos of herself enjoying life to the fullest. She's become the poster child for how people with chronic/terminal illness dare to live out the rest of their days feeling blessed. Indeed, Norma's smile never faded.

While medical care relies on scientific evidence, palliative care is better appreciated as an ideology or faith-based way of life. It's best to separate them into a left and right-brain approach. The two combined form integrative health. Like Reese's Peanut Butter Cups combine peanut butter and chocolate to wow the senses, integrative health satisfies the mind, body and spirit.

While chronically ill patients need both medical and palliative care, few understand the benefits of palliative care, and their physicians are often at a loss as to how to explain this type of care. ("Psychosocial symptom management" sounds like gobble-de-gook to most patients.)

Patients become vulnerable and stressed out when they're sick. Despite the best of intentions, physicians often contribute to patients' pain and suffering. Patients need to maintain control of their own medical decisions and final destinies if they want to achieve peace of mind. They need to hope less and live more.

Here are five easy reminders to
"live a little" with chronic illness:

 
Resource Article

NOT ENOUGH CANCER PATIENTS ARE
GETTING END OF LIFE CARE - NEW STUDY


"Difficult Conversations" about palliative care begin with misleading statements in this article:
  • End of life care isn’t just about dying; it’s about living too.

  • The article notes palliative (end of life) care and finds that patients told us they felt the term palliative care was synonymous with death.

  • Doctor's tend to be overly optimistic about patients' survival and . . . 55% of patients with advance care believed, incorrectly, that their cancer was curable.

  • Repeated cycles of treatment and cumulative side effects can often have a detrimental impact upon the quality of a person's life with minimal benefits in terms of extending survival, yet patients and their oncologists are united in the common goal of preserving life for as long as possible.

  • Now why aren't cancer patients getting end of life care?
 
Hear Dr. H
February 7, 2018
8am - 2:00pm
The 4 Seasons to Caregiving Symposium
Del Webb Medical Center – Auditoriums A & B
14502 W Meeker Blvd.
Sun City West, AZ 85375

Click here for the symposium flyer


 
AVAILABLE NOW ON AMAZON

Is Palliative Care Right For YOU?
by Kevin J. Haselhorst, MD

 
Click here to purchase your copy

The key to making medical decisions
is understanding palliative care:
Palliative Care
is the
bridge between
advance care
and end-of-life care.


When you no longer have your health,
how will you spend your time and money?


Is quality of life more important than
staying alive at any cost?


This booklet will teach you:
  • What palliative care means in practical terms
  • The value of making your own medical decisions
  • How to gain peace of mind with chronic illness
Command respect during your next
doctor visit by saying,
"I receive palliative care."


Learn more at KevinHaselhorst.com


 
Kevin's World
 
OH HAPPY DAY!

People often say, "I don't have birthdays anymore." I might add . . . to each his own. With the Arizona Snowbowl giving free lift tickets to people on their birthdays, I've had a renewed interest in celebrating my February 1 birthday. Any day I can snowboard, which takes me high up on the mountain and away from everything, feels like a blessed occasion.  And with the sun shining, this is the icing on my birthday cake!

Like U.S. Presidents giving the State of the Union Address, birthdays are times to reflect back and look forward to the next year with a thumbs up or thumbs down assessment. I measure quality of life by my state of independence. Am I free from pain, stress, narcotics and co-dependence? So far, so good! Having the ability to snowboard provides striking evidence of my state of the union at age 59. With each passing year, I can use this metric to validate "life is good."

 
How to Approach Living While Dying

Living While Dying

Please support this film that makes “living while dying” easier for everyone to engage.

Help spread the word about
this Generosity fundraiser!


UPDATE

"Living While Dying" movie and discussion with filmmaker in Hawaii - January 28, 2018

Immense Possibilities is a weekly public TV
and internet series that featured an interview with Cathy Zheutlin about Living While Dying

Watch the interview: (10 minutes)
Watch on Vimeo 


Cathy needs to raise more money for the music, the sound mix and the color corrections.  

Please help get the word out to others you think
might want to back this project!  


Only have time for 24 seconds? 

As Cathy explores the reality of her loved ones facing death, she turns the camera around and looks at herself.

How will she approach living while dying?

The end result of the film is to have viewers ponder and pick their own rite of passage.