[Dr. H's Clipboard] It’s Time to Replace the Word “Hospice” with Palliative Care

Published: Thu, 01/25/18



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It’s Time to Replace the Word “Hospice”
with Palliative Care

There is a stigma to hospice. Patients who qualify for hospice are often considered losers who have given up. It’s a shaming, derogatory word like "retarded" used to malign those who are mentally challenged. These people began to receive better recognition and attention when others stopped referring to them as retarded or unworthy. Despite what hospice workers promote, a hospice patient might well be considered "retarded" or a "dead man walking." How can these patients maintain self-respect while selectively being discounted as less than human and not worthy of a physician's time and attention?

From caring for patients with chronic illness in the ER for over 25 years, I approach these patients as a type of focus group. What do they want? What do they find wrong with healthcare delivery? I find that the chronically-ill unanimously detest the word hospice, become insulted by the mere mention of it, and have visceral reactions that erupt in anger. Patients might feel miserable and have no desire to stay in the hospital, but they’ll be damned to consider hospice. They don’t like being sold short and firmly believe more should be done for them.

What patients prefer to receive is palliative care – the other type of healthcare for the chronically ill.

 
Resource Article

PARAMEDIC, PCP COLLABORATION REDUCES UNNECESSARY TRANSPORT TO ED FOR FALLEN ELDERLY


This article is right and wrong on many levels.

Right:
Most assisted-living patients who fall do not need to be treated in the ED.

"One patient had palliative care initiated" – why not others?

Wrong:
There was no discussion about the patient being able to refuse transport to the ED.

If patients were receiving palliative care before they fell, more attention would have been given to what their wishes were.

This study was contingent on:
  1. Paramedic's willingness to consider a non-transport protocol.
    (paramedics are like taxi drivers – they get paid by transporting people) 

  2. Primary doctor being available for phone calls from paramedics.
    (primary doctors rarely return phone calls to emergency departments)

How to Right the Wrong?

If reasonable, the assisted-living nurse makes an assessment of the fallen patient and calls the palliative nurse before calling 911. Help lifting may be necessary, but transport to the ED has been shown to be often unnecessary by this study. If patients receive palliative care, they’re more in charge of the situation and less like pawns of defensive medicine. The study needs to conclude that more chronically-ill patient needs palliative care services.


 
Hear Dr. H
February 7, 2018
8am - 2:00pm
The 4 Seasons to Caregiving Symposium
Del Webb Medical Center – Auditoriums A & B
14502 W Meeker Blvd.
Sun City West, AZ 85375

Click here for the symposium flyer


 
AVAILABLE NOW ON AMAZON

Is Palliative Care Right For YOU?
by Kevin J. Haselhorst, MD

 
Click here to purchase your copy

The key to making medical decisions
is understanding palliative care:
Palliative Care
is the
bridge between
advance care
and end-of-life care.


When you no longer have your health,
how will you spend your time and money?


Is quality of life more important than
staying alive at any cost?


This booklet will teach you:
  • What palliative care means in practical terms
  • The value of making your own medical decisions
  • How to gain peace of mind with chronic illness
Command respect during your next
doctor visit by saying,
"I receive palliative care."


Learn more at KevinHaselhorst.com


 
Kevin's World
 
HUMPTY DUMPTY

The stone bench in my backyard was sitting crooked, so I decided to fix it. I lifted up the seat and the back of the bench toppled and broke into several pieces. It happened in an instant, and I had no advance care plan. I moved the bench before without difficulty, but now the sturdy bench was no more. What was I going to do? Throwing it out or repairing it was more than I could handle alone.

I mentioned the problem to my neighbor, Bill, who routinely blows the leaves out of my backyard. He spoke to the landscaping crew for my community and began devising a remedy.  "All the king’s horses and all the king’s men" would put my bench back together again! It was like the palliative care team had come to my rescue to reduce my heartache.

When I saw the miracle of the finished product, I thought my father would have done this for me when he was alive. Was he still among the living and working alongside Bill in this "broken hallelujah" moment for me?
 
 
How to Approach Living While Dying

Living While Dying

Please support this film that makes “living while dying” easier for everyone to engage.

Help spread the word about
this Generosity fundraiser!


UPDATE

Immense Possibilities is a weekly public TV
and internet series that featured an interview with Cathy Zheutlin about Living While Dying

Watch the interview: (10 minutes)
Watch on Vimeo 


Cathy needs to raise more money for the music, the sound mix and the color corrections.  

Please help get the word out to others you think
might want to back this project!  


Only have time for 24 seconds? 

As Cathy explores the reality of her loved ones facing death, she turns the camera around and looks at herself.

How will she approach living while dying?

The end result of the film is to have viewers ponder and pick their own rite of passage.