Welcome to the
Funny Bone News
Because with EDS, every bone is a funny bone.
|
Hi everyone, my name is Karina, and I am a journalist, advocate and fellow EDSer. You might know me through my film ' We Are Visible,' a documentary about EDS that I produced in 2019.
John, the CEO of EDS Awareness and a dear friend of mine, asked me to send out this new newsletter to you, which will from now on arrive in your inbox every month. It will include more useful information about all things EDS: resources, important events, articles and
more. I plan to make this a place for us to connect and hope to share some insightful information with all of you.
With this first newsletter, I want to introduce myself and my work to you. In the future, however, I will focus on content that interests YOU or share YOUR work.
So please connect with me (via the links below) and tell me what you are interested in, send me articles you wrote or read, and let's make this a place for every person with EDS.
Much Love,
Karina
|
|
|
|
|
It took four years to find out I had EDS, and I crossed an ocean to find answers.
|
|
|
|
|
|
We Are Visible - Documentary
|
We Are Visible portrays six families across the globe living with Ehlers-Danlos syndrome.
|
|
|
|
|
|
|
|
Advocate First, Actress Second
|
|
|
|
|
|
|
|
An investigative article about the causes and consequences of misdiagnoses.
|
|
|
|
|
|
|
|
Edited by Diana Jovin, Disjointed is a comprehensive book about EDS and all comorbid conditions and their management.
|
|
|
|
Events for MAY EDS Awareness Month
|
|
|
|
|
748 Central Ave, Florence, WI 54121
|
|
|
|
Tell me what interests you!
|
Now it's your turn! Let me know what content you would like to have featured in this newsletter.
And this is what I am looking for:
- Articles in the news media on people living with EDS.
- The latest research.
- Advocates, social media influencers and more who live with EDS or similar conditions.
- Blogs, Podcasts, YouTube channels by people with EDS or similar conditions.
- Important resources that help people with EDS or chronic illnesses overall to live their best lives.
- Topics to feature in this newsletter that you are curious about.
You can reach me via
|
|
