Dear fellow Zebras,
Thank you so much for those who have had an opportunity to watch
Karina Sturm’s film ’We Are Visible’ live or on past web screenings.
’We Are Visible’ is now available On Line.
There is information below about the 'Video on Line" screening that you can attend and share with your family, friends and those in the medical community.
We have received numerous e-mails, messages, and comments from people sharing their thoughts about the film with us, and many of them brought us to tears.
We are happy some of you felt that this film is what our community needs. And we are very thankful for your support!
For the past 15 months, Karina has put everything she had into this film, and as a fellow zebra, ’We Are Visible’ is so much more than just a documentary film to her.
"It’s the most important project I have ever taken on. And I feel honored to share it with our community.”
This film is a non-profit project for her, meaning she tries to support Ehlers-Danlos organizations with it. “Only because of John and EDS Awareness team, has this screening been possible. John went above and beyond for all of us. So the small fee to watch the film on demand will go directly to EDS Awareness a.k.a Chronic Pain Partners 501(c)(3). If you would like to support this amazing organization, you
can
Now, some of you have asked about Karina's distribution plan.
'We Are Visible’ has received a number awards at a variety of film festivals. Smaller personal community screenings were conducted around the globe. This has become more difficult with the current pandemic. We are now making this documentary available on the Vimeo "video-on-demand" platform for a small fee benefiting EDS Awareness a.k.a. Chronic Pain Partners 501 (c)(3) organization.
But good things take time. We appreciate your patience.
If you want to help, this is what you can do:
- Spread the word about the film. Share this email or Share a trailer, tell a friend, family member, doctor, or even a journalist about it.
- If you have any contacts with Universities, Hospitals, nurses or doctors that are interested in promoting this film for educational purposes, forward this email or Karina's website and e-mail. We would love to educate more medical professionals about EDS with this film.
- Post on your blog, Facebook, Twitter or other social media. We would love for you to review it there and provide the link.
- Some of our support groups have played it during a support group meeting and then had a discussion.
We appreciate any additional ideas on how to get the film out there. Let us know.
Thanks for your support and your kind words.
Warm regards,
