Thank you for your dedication to supporting our EDS Awareness Programs and Educational Webinars
.
We now have over 75 EDS Support Groups on the EDS Awareness site. The latest one is in Anchorage, Alaska!
We are encouraging you to
participate in some EDS Educational and Awareness activities this year.
EDS Educational Webinar on May 19
Record Awareness Activities
Zebra Shirt orders
Again this year,we are
taking orders for the Zebra shirts. Go to
ww.bodysupportstore.com and place your order.This is a perfect way to communicate our EDS Awareness message during these awareness activities.
The front of the shirt is the same. Per a couple of requests we have made some changes to the back of the shirt.
The shirts are again only $10 each for basic sizes and $4.99 to ship the entire order.
EDS/Chiari Awareness Walk
This year we are partnering with the Chiari CFS Foundation (www.CSFinfo.org) to conduct a combined walk with them for EDS and Chiari Awareness. Many of our EDS groups have members with Chiari and some have participated in Chiari walks in the past. Wear your zebra shirt for this walk.
Local Physician Lectures
We are also partnering
with the Chiari CFS Foundation to host Free Local Educational Conferences with local doctors to discuss EDS and Chiari.
EDNF Conference in Baltimore August 13-15
We were pleased to be asked to be presenters at the August 2015 EDNF Conference in Baltimore. We will be discussing local support group activities and the ways we are supporting members. In
addition to sharing our national education and awareness activities. We will also be a sponsor at the conference. If you are attending please come by our booth and chat with us.
Feel free to contact us with any
questions regarding these activities, starting or supporting your group ........[email protected]
Kind Regards,
